Perris Rotary Scholarship Fund

Hello - If you would like to donate to the Perris Rotary Scholarship fund in Pat’s name, please do so at the following address: Perris Rotary Scholarship fund send to P.O. Box 186 Perris Ca 92572.

This link will take you to Pat's page at Miller -Jones.


Memorial Service: Friday, December 10, 2010 03:00PM to 04:00PM at First Congregational Church

Remembering an Amazing Life

I just want to let everyone know that the Memorial Service will be Friday December 10th at 3pm. It will be held at the First Congregational Church of Perris. The address to the church is 100 North "A" street Perris Ca 92570. There will be a reception after the services and all are welcome. Please in Lu of Flowers donate to the Perris Rotary Club Scholarship fund in Pat's name. Thank you for all for the continued love and support.

Road To Heaven

I first want to thank you all for the love and support that you have given my mom Pat and our family over the last 4 1/2 years. It is with the saddest heart that I write that my mom has lost her long battle with cancer. She has been fighting so hard for so long that she can no longer win the battle. We all thought at one time we had it beat, but it came back stronger and more aggressive then before. So in the end, she is ending her long and beautiful life.

Patricia Ann Patton lived a long and amazing life being able to make friends and family anywhere she sat herself. She was a great wife being loved by her husband and partner Joel Patton. She was the best mother a daughter and son could have. She always seemed to find the time to play and be with us no matter what else was going on. She is leaving behind her son James Patton and daughter Hope Anderson. She was the best Grammie any grandchild could have wanted. Making cookies, going to games, cooking and sewing anytime the grandkids asked. Making sure there were always cookies to eat and Milk to drink. Her grandchildren Alexis Patton, Chase Patton, Avalon Anderson, and Ronin Anderson will miss her warm hugs and amazing love. Patricia (Pat) leaves behind her love for her Sister in law Carolyn Husband and brother in law Richard Husband who were more the in laws but the brother and sister God gave her in life. She has many nieces and nephews and great nieces and nephews that will miss and love her.

Last but not least is the love of her friends from all over the world, without all of you we would not have been able to handle the last 4 1/2 years. What can we say you are not just friends but family. We love you all. We can not tell you what your love and prayers have done for us. Thank you. Once we know when the funeral will be I will send out the final notice. At this time we would like you to celebrate with us the beginning of her new life with God. Love and Peace to all.

In Love

Pat's loving daughter Hope Anderson.

Happy Turkey Day

Mom (Pat) had a good Thanksgiving with all of us. My family (Hope), Jame's family, and dad (Joel) all went up and spent time with mom on Thanksgiving day. We spent around 4 hours with her and she was sitting up and talking with all the kids and us. She has been moved out of ICU and back into a regular room, so we all got to spend a lot of time with her. We all went in and out of her room and kept her company until she starting trying not to fall asleep on us. I think we wore her out pretty good lots of people coming and going, and little ones talking to her all the time. But I think she had a great time and enjoyed every minute. She is doing better and is talking about how she can not wait to get out of there. She is still on dialysis but she has pee a little bit on her own, not enough to be too excited, but it is a start. She is not in the clear yet but we at least heading in the right direction again. So as I had a great Thanksgiving and know I have a great Deal to be thankful for I hope all of you did as well. I want to take this time to THANK all of you for your continued support and love. Have a great day.

Hope

not so sad

The information that we got today from the doctor was not great news but not the worst news ever so here is what we know. Mom (Pat) is not doing great but that she can turn around and do better but it is going to take 2 to 3 weeks to see the results of the treatments. So currently she is on dialysis due to the graft vs host disease. Her cancer is damaging her liver and all of this is causing her kidneys and bowels not to work correctly. So for the first time ever we are all hoping and praying she pees ,a lot, all on her own. When she does then we will know that things are starting to turn around for her and heading in the right direction. This is all we know for now and we are waiting for the next two weeks to see how things improve. It has been a really hard day but in the end I think we are heading in a positive direction. Please keep the prayers coming and thank you all for your love and support.

Love

Hope

Sad

I am sitting here trying to figure out the best way to say this and there just is not one. So I am sorry to have to write this but Mom (Pat) was moved to the ICU yesterday. The doctors are concerned because the cancer is being so aggressive again. Her kidneys are being attacked and she was but on dialysis today (11/19/10). The doctors say there is still a good chance of recovery, but she needs to turn around quick and can not have much else go wrong. It has been a hard couple of days but we are still fighting hard and working to get things moving in the right direction again.

Thank you all for your continued prayers and support.

Hope

Slowly getting Better

I will do my best to get everyone up to date on what is/has been going on with my mom (Pat). The tumor they found in her arm was cancer and no surprise to the doctors (surprise to us). Her liver was not working well thus was because of either the GvH (which is what the doctor thinks) or from the cancer. They started her on treatment for the GvH for a couple of days and then started her on treatment for the cancer as well. Then she got some blood clots in her arm where they did the surgery, so she had surgery again on the same arm. (ouch). That is the recap for now.

Now for the update:

I call and talk with mom the last couple of days and have gotten good news two days in a row. Her liver counts are down and her liver is improving daily, her GvH is getting better which means her stomach has quieted down and she is able to eat again with out too many problems, her arm is healing well and her blusters are getting better and healing over (blusters on her arm from skin being so thin). So all in all good news. She is getting small amounts of chemo again to help fight the cancer and is on pain medication for her arm, so if you call and talk with her, she will sound drunk and repeat the same stories. She has never been able to hold her liquor. (hehe) Anyway good news for now and things are slowly improving, but at least she is improving.

Thank you all for your continued love and support.

Hope

Donors needed.

Please donate Blood and Plasma. My mom (Pat) needs blood and Plasma twice a day right now and so if anyone has time to spare please head to City of Hope and donate. They give out great prizes for those who give, however they only place that you can give blood to go to my mom is City of Hope they do not get blood products from anywhere else. You can go to City of Hope's website list on side of this blog and find out all the information need to make appointment and to donate. Again if you have time it is needed. Thank you.

Update

Mom (Pat) is doing okay at this point. She had surgery on Saturday which we were told about on Friday night about 5:34pm. She needed to have blood clots removed from her arm, this was due to her arm not healing correctly from the previous surgery. The surgeon said this surgery went well and that he was able to remove the clots and clean out her arm, however she has some skin blisters because her skin is so thin and sensitive. The doctor told her today (Monday 11-8-10) that her liver counts were down, which is good news. Her stomach problems are getting better and she is eating full meals again. We were all hoping that she would be home for Thanksgiving but it looks she will be in the hospital again this year, but as long as we are all together it does not matter. She is improving but it is slow. She needs to recovery from the most recent surgery and have the GVH and cancer more under control, we are closer but still have a long way to go.
As always thank you all for your love and support.

Hope

GVH vs Cancer

Saw the doctor today with Mom (Pat) and from what I understand she is where he (the doctor) wants her to be for the most part. The reason that they have not done a great deal to fight the graft vs host (GVH) disease or the cancer is because he is letting them fight each other. The cancer coming back activated the GVH, which is attacking the cancer, and he is balancing letting the GVH destroy the cancer, and not letting the GVH destroy her. At this point the doctor is starting her on the medication to treat the GVH and will start her on the anti-cancer medications if/when necessary. Her arm is healing well and the arm surgeon stated tonight that if her arm was the only issue, her could release her today. However she has more going on and needs more time. She has a least a couple of more weeks in the hospital and we are hoping that she will be home for Thanksgiving. That is the update for now thank you.

Saw mom (Pat) today, took the kids to see grammie and she is doing better. Her arm is healing well and the surgery went well. She is still needs to get her stomach under control which they believe is because of graft vs host disease but, are not a hundred percent sure yet, need to do some more test. The doctors are working to get the cancer back under control again, the numbers went up after the surgery (that was expected). The doctors need to work to get the numbers under control, help the stomach get better, and make sure her arm continues to heal well. She seemed to like seeing the grand kids today and enjoyed watching a movie with them. It was a good visit with grandpa and grandma. Thank you all for the support and prayers.

The Surgery update

Mom (Pat) had her surgery on Wednesday in order to fix her arm. The surgery went well. Her arm was pretty bad so they decided to replace the shoulder and the upper arm bones. She now has a metal arm and shoulder. There was a large tumor on the arm bone and it had gone into the muscle/tissue. So we are waiting to find out the results of the biopsy which will tell us whether or not it is active cancer. Either way her cancer needs to be put back into remission again. She will need lots of recovery time at least 6 weeks before she can move the arm. That is all for now. I'll do my best to keep everyone up to date.

As Comfortable as it gets

I (Hope) went and say mom today and she is as comfortable as one can be with an constant upset stomach and a broken arm. She is slowly getting better but it is often two steps forward and one step back. She is waiting to see for a lot of things they found a blood clot so she is now limited to what she can do once again, and is now on more medication to dissolve this. The clot is at the end of her pick line ( permanent IV) so they have to be careful and remove the clot because they need to keep that pick line. The doctors are trying to solve the stomach issues and get the Graft vs host disease under control. It looks like they have the pneumonia under control and all the other infections as well. So we are just trying to slowly work down the list and take care of all the issues. Again thank you for your continued support and prayers, keep them coming.

Improving

Much better news to give today. Mom's (Pat) cancer is reacting better then the doctor thought to the medication and it has gone down greatly. YEAH. Also, she is feeling much better and doing better everyday. The other great news is the doctors scheduled the surgery for her arm for next Wednesday. So her arm is going to get fixed next week. She is feeling better and the doctors feel she will be out in a couple of weeks. She needs to get over her stomach problems and start eating. But we are moving in the right directions. Thank you all for your support.

Not quite there

I (Hope) went and saw Mom (Pat) today and she looked better and sat up in a chair for a while this morning. All in all better but not quite there yet. She is doing a little better and they are running more test to see what is going on. She is still not eating so the doctors order an IV feed. It may take a while for her to pull out of this but small steps are better than no steps. But there was some improvement. Thank you all for your continued support and care. Love you all.

Hope

OOPS

Well no news is good news. I have not had to write anything for about 11 months because we had smooth waters for a while. Mom (pat) was doing well and even went back to school for 3 days.

Well now things went side ways on us. She is not doing well at the moment. We are not sure what is wrong at this time. She is sick with vomiting and ect.., so she is dehydrated and malnourished (this is not a comment on dad's cooking however he is believe it or not a really good cook).

Right now she is at City of Hope on the fifth floor and we are waiting to hear what the doctor says about her. She has had some more test and then some more test and we are waiting to find out what they all say and mean.

She does have her broken arm which needs surgery in order to be fixed but can not do the surgery until we get all this under control. Her cancer is back but at the last talk with the doctor he believes he can get it under control again. She does have graft vs host disease where the donor cells say hey this is not by body and starts attacking. Then to add insult to injury she now has pneumonia. Soooo, sorry for the bad news but I know lots have been asking about her so that is what I know as of 8pm Sunday night. When I learn more I will try to write more. Thank you all for your love and support.

Hope

more good news

Hi,
Saw the Dr. on Thur. all my counts are good. He didn't change any of my meds and I don't have to go back for three weeks!!! He gave me a z-pack for the cold and it's already much better. I do have to go in for an infusion on Tue. (6hours) as my immune count is down for the third time. I would say I am going to read but with all the pre meds I know all I'll do is sleep. I am going to go now and play with the grand kids. Have a great weekend everyone.

Beautiful weather and beautiful news

Hi all,
We are having beautiful weather and great news. All my counts are doing great. In fact they are so good I am now down to 5mg of steroids per day!! The Dr. also took me off of two of my other meds and lowered the amount of two more meds. I am down below twenty meds now how great is that.
My energy is much better I am back up to about 50% off my pre cancer energy. Haven't been there in a long time. I even had the energy to make Easter outfits for Avalon and Ronin. Yesterday Ronin and Avalon helped me plant a vegetable garden I pointed and they dug and planted. What fun.
Hope your life is going as well as mine and that you are looking around and seeing all the miracles.
Love Pat

Sorry to take so long

I will try to catch every one up with as few words as possible. March 8 I went to school and got to see all my friends I have missed. I also got to talk to the student about multiple myloma hopefully it will help with the pennies for patient drive. They hope to raise $8000. That would be great.
March 9 was Dr. visit day. I now have every two weeks. I do have some new med. for an inflamed urinary track.. It seems to be working. I am now down to 5mg one day and 10 mg the next day for my steroid. Getting there. All is good.

News that's great

Hi All,
Yes I had another great visit to City of Hope. I am down to 10 mg. of steroids a day. The great news is I only have to go back every 10 days. I don't know what to do with all the extra time, but I'm sure I will figure out something. I am even driving a little which gives me the felling of independence. I am getting back my hair although at the moment it looks like a every bad die job and and even worse hair cut. It will be interesting to see what happens.
Love to all Pat

Two weeks of news

What a great two weeks. Last week the Dr. told me no more mask and to go out and enjoy the world. He lowered my steroids to 15mg. And I am only seeing him once a week. I have an extra day each week now. This week Dr. lowered my steroids to 15mg one day and 10 mg. the next day soon to be off of them Yeah. He also took out my pick line. That is big as that means he doesn't think I will need any more infusions or transfusions. Oh by the way yesterday was day 100 that was when I was to get to come home. I am ahead of the time line by a lot. Hope you are all having as good a new year as I am.

Great day at the Dr. All numbers are good and he dropped my steroids down to 20 mg. getting there slowly. But the big news is I don't go back to see him until Monday. That's a whole week. no more Monday Thursday appointments. Really big deal as I am only at day 87 and they gave me back salads, too.
Hope you have a great weeek
Pat

WOW

Hi All
Yesterday was Dr day and all is great. Rash was gone by New Years. The Dr. is taking me back off of so much steroid. They have given me back most food but not raw vegetables (salad) maybe next week. The big news is I am allowed to go out!!!! Not into big groups but to the store, friends houses and I can even go out to eat as long as it is not fast food or deli food. So after almost 80 days we stopped on the way home from City of Hope and had a steak at Wood Ranch. It was so much fun to just be out. Hope everyone is having as good a new year as I am.
Love to all
Pat