Two weeks of news

What a great two weeks. Last week the Dr. told me no more mask and to go out and enjoy the world. He lowered my steroids to 15mg. And I am only seeing him once a week. I have an extra day each week now. This week Dr. lowered my steroids to 15mg one day and 10 mg. the next day soon to be off of them Yeah. He also took out my pick line. That is big as that means he doesn't think I will need any more infusions or transfusions. Oh by the way yesterday was day 100 that was when I was to get to come home. I am ahead of the time line by a lot. Hope you are all having as good a new year as I am.

Great day at the Dr. All numbers are good and he dropped my steroids down to 20 mg. getting there slowly. But the big news is I don't go back to see him until Monday. That's a whole week. no more Monday Thursday appointments. Really big deal as I am only at day 87 and they gave me back salads, too.
Hope you have a great weeek
Pat

WOW

Hi All
Yesterday was Dr day and all is great. Rash was gone by New Years. The Dr. is taking me back off of so much steroid. They have given me back most food but not raw vegetables (salad) maybe next week. The big news is I am allowed to go out!!!! Not into big groups but to the store, friends houses and I can even go out to eat as long as it is not fast food or deli food. So after almost 80 days we stopped on the way home from City of Hope and had a steak at Wood Ranch. It was so much fun to just be out. Hope everyone is having as good a new year as I am.
Love to all
Pat

Always something new

Hi,
Just got back home from City of Hope all my numbers are good my only problem is I have a rash that is now all over my body. At first the nurse practitioner thought it was due to the antibiotic I was taking so Monday she changed the medicine. But today she had the Dr. look at it and it is Donner vs Host a form of rejection. The Dr gave me two oppositions to be put in the hospital or the go home and try the medicine and come back tomorrow. I am home. I am also on 60 mg. of steroid today and tomorrow. He will check to make sure it is working at 11am tomorrow. I am praying that it works!!! Other than that I am doing well and enjoying the time before Christmas. Made cookies with the grand kids yesterday what fun. We are having dinner at James house tomorrow and at my house on Christmas ( Joel cooking under my direction).
I Wish All a every Blessed Christmas.
Pat

Good news

Hi,
Thursday 12/17 was city of hope day and what a day. The STR (DNA) test came back and I am fully graphed which means I now have someone else DNA and Blood type. Spooky. My M spike the test for cancer in the blood is at 0 and all my other counts are great. I did manage to get a cold/flu I asked how as I have been no where and seen no one. Dr. said its in the air and it's not that unusual so am on timiflu and an antibiotic seems to be working as it is almost gone. I go in tomorrow for a 6 hours infusion to help my immune system so this doesn't happen again. Good idea long day. All in all this is a wonderful Christmas.
Have a great Christmas
Pat

Hi,
I got to come home Thursday night. I now know what heaven is like. It is my recliner and my bed. After 50 days it was so good to be home. I am being very careful to follow all the rules and you know how hard that is for me but this time I know my life depends on it. Will write soon now I am going back to my recliner and rest.

Home soon

Hi from the village,
Yesterdays doctors visit was very good. Numbers are doing good and I am getting stronger each day. Now for the news the doctor said if I keep improving I will get to go home next Friday and just come to the hospital on Mondays and Thursdays. We thought we were here for 60 more days so this is big. I will still need someone with me 24 - 7 but it will be a lot easier at home. I just had to share that with you.
Thank You for all the prayer and caring
Love Pat