more good news

Hi,
Saw the Dr. on Thur. all my counts are good. He didn't change any of my meds and I don't have to go back for three weeks!!! He gave me a z-pack for the cold and it's already much better. I do have to go in for an infusion on Tue. (6hours) as my immune count is down for the third time. I would say I am going to read but with all the pre meds I know all I'll do is sleep. I am going to go now and play with the grand kids. Have a great weekend everyone.

Beautiful weather and beautiful news

Hi all,
We are having beautiful weather and great news. All my counts are doing great. In fact they are so good I am now down to 5mg of steroids per day!! The Dr. also took me off of two of my other meds and lowered the amount of two more meds. I am down below twenty meds now how great is that.
My energy is much better I am back up to about 50% off my pre cancer energy. Haven't been there in a long time. I even had the energy to make Easter outfits for Avalon and Ronin. Yesterday Ronin and Avalon helped me plant a vegetable garden I pointed and they dug and planted. What fun.
Hope your life is going as well as mine and that you are looking around and seeing all the miracles.
Love Pat

Sorry to take so long

I will try to catch every one up with as few words as possible. March 8 I went to school and got to see all my friends I have missed. I also got to talk to the student about multiple myloma hopefully it will help with the pennies for patient drive. They hope to raise $8000. That would be great.
March 9 was Dr. visit day. I now have every two weeks. I do have some new med. for an inflamed urinary track.. It seems to be working. I am now down to 5mg one day and 10 mg the next day for my steroid. Getting there. All is good.

News that's great

Hi All,
Yes I had another great visit to City of Hope. I am down to 10 mg. of steroids a day. The great news is I only have to go back every 10 days. I don't know what to do with all the extra time, but I'm sure I will figure out something. I am even driving a little which gives me the felling of independence. I am getting back my hair although at the moment it looks like a every bad die job and and even worse hair cut. It will be interesting to see what happens.
Love to all Pat

Two weeks of news

What a great two weeks. Last week the Dr. told me no more mask and to go out and enjoy the world. He lowered my steroids to 15mg. And I am only seeing him once a week. I have an extra day each week now. This week Dr. lowered my steroids to 15mg one day and 10 mg. the next day soon to be off of them Yeah. He also took out my pick line. That is big as that means he doesn't think I will need any more infusions or transfusions. Oh by the way yesterday was day 100 that was when I was to get to come home. I am ahead of the time line by a lot. Hope you are all having as good a new year as I am.

Great day at the Dr. All numbers are good and he dropped my steroids down to 20 mg. getting there slowly. But the big news is I don't go back to see him until Monday. That's a whole week. no more Monday Thursday appointments. Really big deal as I am only at day 87 and they gave me back salads, too.
Hope you have a great weeek
Pat

WOW

Hi All
Yesterday was Dr day and all is great. Rash was gone by New Years. The Dr. is taking me back off of so much steroid. They have given me back most food but not raw vegetables (salad) maybe next week. The big news is I am allowed to go out!!!! Not into big groups but to the store, friends houses and I can even go out to eat as long as it is not fast food or deli food. So after almost 80 days we stopped on the way home from City of Hope and had a steak at Wood Ranch. It was so much fun to just be out. Hope everyone is having as good a new year as I am.
Love to all
Pat