Wednesday, December 23, 2009

Always something new

Just got back home from City of Hope all my numbers are good my only problem is I have a rash that is now all over my body. At first the nurse practitioner thought it was due to the antibiotic I was taking so Monday she changed the medicine. But today she had the Dr. look at it and it is Donner vs Host a form of rejection. The Dr gave me two oppositions to be put in the hospital or the go home and try the medicine and come back tomorrow. I am home. I am also on 60 mg. of steroid today and tomorrow. He will check to make sure it is working at 11am tomorrow. I am praying that it works!!! Other than that I am doing well and enjoying the time before Christmas. Made cookies with the grand kids yesterday what fun. We are having dinner at James house tomorrow and at my house on Christmas ( Joel cooking under my direction).
I Wish All a every Blessed Christmas.

Sunday, December 20, 2009

Good news

Thursday 12/17 was city of hope day and what a day. The STR (DNA) test came back and I am fully graphed which means I now have someone else DNA and Blood type. Spooky. My M spike the test for cancer in the blood is at 0 and all my other counts are great. I did manage to get a cold/flu I asked how as I have been no where and seen no one. Dr. said its in the air and it's not that unusual so am on timiflu and an antibiotic seems to be working as it is almost gone. I go in tomorrow for a 6 hours infusion to help my immune system so this doesn't happen again. Good idea long day. All in all this is a wonderful Christmas.
Have a great Christmas

Sunday, December 13, 2009

I got to come home Thursday night. I now know what heaven is like. It is my recliner and my bed. After 50 days it was so good to be home. I am being very careful to follow all the rules and you know how hard that is for me but this time I know my life depends on it. Will write soon now I am going back to my recliner and rest.

Friday, December 4, 2009

Home soon

Hi from the village,
Yesterdays doctors visit was very good. Numbers are doing good and I am getting stronger each day. Now for the news the doctor said if I keep improving I will get to go home next Friday and just come to the hospital on Mondays and Thursdays. We thought we were here for 60 more days so this is big. I will still need someone with me 24 - 7 but it will be a lot easier at home. I just had to share that with you.
Thank You for all the prayer and caring
Love Pat

Tuesday, November 24, 2009

No Cancer

Hi All
Just talked to the Dr. and the test show no signs of the myloma. They will do a bone marrow biopsy in the next two weeks which will show if there is any left in the marrow but it looks really good.
Thank God

Monday, November 23, 2009

Pat is Getting Out

Everyone it is finally happening, that is right she is getting out.
Pat will be going to the Hope Village on Wednesday in time for Thanksgiving. She is so excited and happy. She is doing great and all her numbers are where they are suppose to be. So the doctor is letting her get out of the hospital. However the doctor had told her he would let her know today and then was not able to come and see her until 6pm by which time she had worked her self into a big fury. When the doctor got there she did not give him a chance to even talk before she was asking when she can get out. He examed her and then finally told her she could get out on Wednesday. Which is good because I thought my mom was going to take him on and my money would have been on her to win.

Any way she is getting out and we are so excited.


Sunday, November 22, 2009

Low Bacteria Diet

So what does a low Bacteria Mean. Kevin (because he is amazing) was able to up load the guidelines below. Please just click on the page and it will get bigger so that you can read them. This way everyone can know what she can and not eat. This is not all the information but it is most of it. When in doubt ask, but this should help out most of us. Thank you all.

P.S. if you make food and she can not eat it, we can.

love Hope.

Friday, November 20, 2009

Heading Home for the Holidays

Well folks we are close to getting her out of the hospital. Again she will still be at City of Hope but in their apartments on site. Once the RV site are redone she move there. So mom is look at trying to get home for Thanks Giving however the doctor is not so sure. She needs to be eating three meals a day and is up to two. But she is getting better everyday and looks great and is more her self.
My dad and myself met with the nutrients today about how to care for her food. There seems to be a lot of things she can not eat and very little she can. So please make sure before you cook her anything it is okay. We have hand outs and information sheets that I can give if you ask. I am also going to list the general rules here.

she is on a low bacteria diet. Foods from take-out or restaurants are not allowed at all.
  1. wash hands and all surfaces (including cutting boards) with bleach solutions (see 2)
  2. wash can foods and drinks with bleach solutions (1 part bleach to 9 part water)
  3. Allow dishes ect to air dry do not towel dry. Best to hand wash not dishwasher.
  4. DO NOT use the microwave to cook any of her food.
  5. Wash all food with 1 teaspoon bleach to gallon of water solution (fruits and vegs)

Once the food is cook she has to eat it within an hour or she can not eat it. Once eaten she can eat the left overs the next day then it has to be throw away (if cleaned up and put away within an hour.) Frozen food has to been eaten within a week (cook at home then Frozen). Frozen food from grocery stores is okay. Frozen foods have to be cooked in the oven or stove top, can not be cooked in Microwave. She is allowed only five kinds of Fruit which are: apples, oranges, bananas, watermelon, and honeydew. No other fruit.

We are asking for extra cook books that were giving to us to hand out to those of you that may be interested. If you have questions or concerns please let me know I will do my best to answer.

Please take care and thank you


Saturday, November 14, 2009

Light at the end of the Tunnel

So things are still looking good. She is doing better every day. Today (Saturday November 14th) she ate some chicken broth soup and kept it down. Also her and I went for a short walk around the nurse's station. The doctor came in late on Friday and we talked to him and her numbers are looking good. He said he was going to take her off the Morphine and that her numbers were looking very good. We asked about her blood type and he said it was not time yet to look for that, it was to early, and that the blood bank keeps him posted on all that daily.
All in all she is getting better everyday.
She asked about Thanksgiving. The doctor told her it was too soon to tell her for sure. That he does not release bone marrow until after 35 days and Thanksgiving is the 35th day. He said he would try but would not promise her anything. So we have a plan A and plan B, C, D ect. depending on what needs to be done. But it will all work out in the end.
One more important note is that she is now showing signs of host vs graft disease. This is not necessarily a bad thing. She has a small rash. If it stays this small then things are great. We want a small amount of host vs graft, because what is happening is: the new cells are killing off my mom's old cells including the cancer cells. Which means that it helps reduce the chance the cancer can come back. the other good news is that she has gone this long with out it happening. So the longer past transplant the better odds that it will be minor concern and not a major concern. So prayers and thoughts to keep it small and that it eats the cancer.
If you have question you can email me or visit any of the links on this blog. We are all doing well and getting ready for our real work to begin. When she is release from the hospital and we are in charge of her care. This is when we may need more help with food, visits, care, and general everyday stuff. She will be staying in the Hope Village until the RV site are back up running (they are currently under construction). Which is on the hospital grounds. They have lots of cool things there such as a comedian every Friday night (and we are talking big names). So there is lots to do there including a play ground for the children. Not sure how long she is there it depends on how she is doing. Most likely by Christmas she will have day pass home for a night or two. But since we do not even know about Thanksgiving I guess trying to figure out Christmas is just Crazy talk. Okay enough for tonight. Have a great evening and please count all the wonderful things in your life. I know that I am.
Well I guess that is all for now. Take care and thank you all.

Thursday, November 12, 2009

Still Here and Still Kicking

Okay so Pat (aka Mom) will probably kill me for this picture but I think she looks great bald. Her head is perfectly round. Who has a perfectly round head? She is doing good. Her new cells are making themselves right at home. Which is great, but they are also having a big party in their new home, which is making my mom sick, it suppose to make her sick but knowing that does not make it suck any less. She feels a little better everyday and is able to do more everyday. The doctor and the nurse say she would feel even better if not for the flu, which she is still fighting off.
The doctor is slowly getting her ready to get out, she needs to eat, and be off the IV's. But this needs to happen slowly and in time and they need to be careful not to cause her more problems by taking her off too soon and making things worse for her.

Well we are still visiting everyday and sometimes she loves visits and sometimes she more tired than anything. So please be patient with her if she falls asleep while you are talking (she does it to me all the time). However I am sure that it takes a lot of energy to grow new cells, and fight off cancer, so I guess she is forgiven.
I want to thank everyone for their thoughts and prayers. Please keep them coming we are not out of the woods yet. However they are greatly appreciated. Also thank you to those of you who have been able to make a blood or platelets donation it helps out so much. Thank you all for your kindness and love.

Wednesday, November 4, 2009

Great News

The good news is that my mom's new cells are growing! We are happy with this news, however we need to still watch for rejection. Soooo we are happy with a chance of worry.

She is feeling better and able to talk more and stay awake longer. With the first hurdle not so much jumped over but knocked down and crawled over we still have many more to go. But one down is better than none.

She still needs blood and platelets so if you have the time please donate, you can donate directly to my mom at City of Hope only. However all hospitals need blood so please donate any where.

Much love. Take care.


Sunday, November 1, 2009

Day Eight and counting

So things are going okay in the hospital. They are suppose to shave her head tomorrow (Monday November 2). She is on course for her treatment, and reacting with all the side effects on schedule. However reacting to the side effects sucks big time. Lets just say she is on a morphine drip and at times is extremely fuzzy. So cards and notes are greatly welcomed. Please remember no flowers or balloons they are not allowed in the hospital.

We are waiting for her T-cells to starting producing and that should be sometime in the coming week. As we wait for the cells to start to grow we also are concerned for the host vs graft issues, she is having some problems with her kidney function, so has not been able to receive as much of the anti-rejection medication as the doctor would like. It has been a weird balancing game of give her the medication having her kidneys react, then flushing her kidneys out then having them come back, and then getting the medication again.
The doctors and the nurses are very nice and have been a big help with getting information and treating my mom well. For a while my mom need a 24 hour nurse in her room because she was a big risk for falling. They did not want her getting out of bed by her self and she could not be trusted to not get out of bed, so 24 hour nurse. However she does not need one any more she is doing better calling and getting out of bed her self without too much risk.

Well that is all I have for now, sorry been so long I have been busy visiting her,will try to update more often. thank you all for caring.


Saturday, October 24, 2009

New Cells are In

Happy Halloween
The Good new is that my mom is finally in the hospital. After all the date changes and the donor changes we are finally there. The second good news is that she got her new t-cells on Friday (October 23). So today is day 1. Good news all around and she is doing as well as one can when they are saving your life by bring you as close to death as they can without actually getting there. So lots of icky side effects, but she is handling it all very gracefully and with dignity.
James and I skype her every night. The above picture was taken via skype. For those that have no idea what I am talking about. Skype is communication system used on your computer with web cam to talk and see each other. This way she can visit with her grandchildren.(Due to the concern over the swine flu ect... the hospital has changed the visitor age limit to only those over 18 years old.) We bug her every night whether she likes it or not. The kids love to see her and have fun making faces at her. It seems good for all of us. We that is all for now.

Saturday, October 17, 2009

Helford Hospital Finally

We are finally there. My mom (Pat Patton) has start her Chemo for the transplant. She start on Thursday and will get Chemo very day until Tuesday and then they will admit her. She will be admitted on Tuesday and get settled and then they start the major doses of Chemo and other medications to prepare her to receive the transplant. Then she will get her new T-cells. The day she gets her T-cells is day 0, then we count up for there until day 100. Then we celebrate her home coming.

She will be at Helford Hospital at City of Hope. She will be there through most of the major Holidays. She is allowed visitors and would love to have them. There are guidelines there to protect the patients. Please visit the link post to the right side under visitation guidelines.
She did get more good news the results of the biopsy showed that the cancer in her bones has dropped to 10% down for 90%. Yeah!!!!! So we are starting off very good.
Will write more later thank you all.

Monday, October 12, 2009

The Biopsy

So my mother is an easy drunk. She had her biopsy today and it went as well as it can with out being put under. They gave her lots of medication, it did not get rid of the pain, but made it so she did not care she was in pain, it worked okay. She is a funny drunk person. I found out today that the dates I had are wrong, some would say I heard it wrong, others would say I was told wrong, However you look at it they are wrong, So here are the new dates: She starts her transplant chemo on Friday October 16 and has it Friday, Saturday, Sunday, Monday and then put into the hospital on Tuesday October 20th.
However we have a meeting with the doctor tomorrow, so all this can change again. Will update again soon.


Sunday, October 11, 2009

So Close yet so Far

Well we are at it again. My mother's numbers are where they are suppose to be and the last time we check we still had a donor. So off we go again to try and get her new bone marrow cells. So the new dates are Tomorrow Monday the 12th she will have a bone marrow bi-opsy again. However due to time issues, she can not be put under so Owe. Then Tuesday we try again to have the Family meeting. If everything goes right, she will start the chemo on October 19th and go into the hospital on October 26th. Then for my mom the hard part starts, growing new bone marrow.

We are close now to having her cured, we just need to get her into the hospital, but we are closer now then we have been before so that is good.

Please remember that these dates can and will change with out notice. Thank you all for your continued support and love.


Thursday, September 24, 2009

Good News

Good news from the doctor today. My mother's cancer numbers are down and we still have a donor. We are scheduled for October 24th but again please do not set this in stone. This is good news and we again on the right track. She still needs to have chemo and steroids but at least we are moving again.


Wednesday, September 23, 2009

More updates

So here is more information. The good news is that my mother is oh so graceful and falls. Her back is hurt because she fell and not because she has a tumor or any other serious concerns. The not so good news is her cancer numbers keep going up. She is still on steroids and chemo and hopefully her numbers will drop soon. My mother and father are going to City of Hope tomorrow for more blood work and more chemo. At this point not much to do but wait for her numbers to go down. As of Monday we still had the donor and they were double checking with him for the new dates, but at least he was still around. So that is all for now I will write when we know more. Take care.


Saturday, September 19, 2009

The emotional Roller Coaster ride continues

Okay, I just wanted to add to want my mother wrote. So she will not be admitted into the hospital now until the Doctor and the new chemo can work it's magic. They doctor called the Donor center and asked to push the schedule back three weeks.

Her cancer numbers (the bad protein numbers) are up and her M spike which also is related to the cancer proteins are up. So the bad protein and the M spike can not be going up when she receives the transplant. It is hard to understand so I will let those of you who are interested google it. Other wise trust me in that her numbers need to be going down when she has the transplant.

So my mother got an infusion yesterday after meeting with the doctor and she will be going twice a week for three weeks for infusions. The doctor will re-evaluate her numbers to see where she is at every week. A side note, my mother fell a couple of weeks ago and re-injured her back. She informed the doctor that she is still hurting. The doctor is concerned because this is happening the same time her number are going up, so she needs to take steroids everyday until Monday. She will then go in for an MRI on her back to find out what is wrong with her back, the doctor is concerned that it may be a tumor on her spine. Which is why he put her on the steroids they will help slow or reduce the tumor if there is one.

We all believe that she hurt her self being oh so graceful, but the doctor wants to be careful at this point. Which we are all grateful for, though being on that much steroid for that long will be a challenge. But the doctor did give her strong sleeping pills which my father is thankful for.

At this point it seems it is a wait and see. So to sum up, my mother is on stronger chemo twice a week, more steroids, we need to wait for the transplant until her numbers go back down. The transplant will happen it is just a matter of when.

thank you all.

Friday, September 18, 2009

One more ride

We visited City of Hope today, this time the whole family ( Hope, James, Joel, Candy and me) for the meeting before I go in. Only as it turns out that is not what is going to happen.Good news I still have a doner! Not so good news my counts (numbers) are not where they need to be so we start a new plan. The transplant is being moved back three weeks so they (the Dr's) can work on getting my numbers down as needed. M spike, Agi, protien, and kidney numbers all need to come down. Red, white, platelets all need to go up. Sort of like a math brain teaser. Anyway I will be getting infusions on Mon. and Thur. at city of Hope. I will get valcade, and Cytoxan both are chemo plus Decetron (steroid), with all the keep me from getting sick meds. that should make life interesting and it should move the numbers in the right directions.

So for those of you still on the ride with me it looks like the rollycoaster just took off again before we could get off. Hang on for the ride, throw your hands in the air and scream. We might as well have so fun if we are going to keep riding.
Remember to look for the Miracles
they are everywhere

Friday, September 11, 2009

New Dates

We ( Joel, Pat and myself Hope) went to City of Hope again today for a Doctors visit. (she will be going every week until this is over). I told you not to write the dates in ink, yes we have new dates. The new admit date is not set yet, she has the option of getting her chemo and still being at home for the first week if her numbers stay the same or get better. So we are looking at the end of September around the 28th. The donor is schedule (yes scheduled) to donate on October 1 and she would get the cells on the 2nd. She needs to be in the hospital for nine days before that.
We are having a family meeting with the doctor next week to find out how best to take care of her after she is release from the hospital, but having to stay close to the hospital. Please let me know if any of you are interested in helping with the after care. Just email me or call. I am planning to video tape the meeting.
Other than that she is doing good, tires easily, sore back, and more on the tired end. If you have question post them in the comment section and I will do my best to answer them. Take care and thank you all for your thoughts.

Saturday, September 5, 2009

Third time is the charm. I hope so, if you have been counting doners we are now up to three . Number two couldn't be a doner until Nov. 2010. So the new doner is a male , 20 years old with -B blood type. He matches all but one Major marker and is only a minor mismatch on that marker. He also doesn't match on one minor marker. What does that mean to me? It changes my percents. I now have a 40% chance that this will all work and I will be cancer free before it was 50%. I have a 35% chance that there will be a life threatening host vs doner reaction and or death before it was 25% . I have a 25% chance of going through all of this and being right were I am with the cancer after, that percent is the same as before. Dr. Parker said it just means he will have to adjust the rejection meds, that with the new meds that are out now we should be fine.
Why not wait and see if I can find a better match? My cancer is being very uncooperative. Even on the chemo it keeps trying to take over. The Dr. is having a hard time keeping my numbers down. We can wait but there will be significant damage to my health. So we go with the new doner. I am very lucky I have a third doner to go with there are lots of people that would jump at a chance to have any kind of a match.
We will know for sure if this doner is a go next Friday. I will update all of you than. Have an awesome week and please enjoy each day.
Look for the miracles.

Thursday, September 3, 2009

More Donor issues

Okay so we do not have any idea of what is going on, all we do know is that City of Hope changed my mothers admit date again. So now it is not until the 28th of September. Please do not write this date anywhere in ink. I have made that mistake one too many times. Write in pencils so you can change it as needed. All joking aside.

I wanted to update everyone so that they know. My mother has a doctors appointment tomorrow and hopefully we will learn more. But for now all we know is the date has changed once again, and we will continue to ride the emotional roll coaster until we have my mother cured.

Thank you all, sooner or later we will need your support and help in my mothers recovery, I will keep everyone posted as much as possible.

Thursday, August 27, 2009

Transplant Update

Today was another day at City of Hope. Today was the first day we had a bad day there as far as having things go smoothly. Today things did not go smooth. City of Hope put in a new computer system and everyone is still getting use to it, sooo things went wrong. The only major issue was a accidental cancelled appointment, but that was worked out in the end. So all well that ends well. One day in three years is still a great record.
Okay so on with the transplant information. So the original donor backed out. We now have a new donor. She too is in her thirties and in America. They match on 10 out of 12 markers which is good but not great. So the new time line is: my mom will check in on September 14th and then the count down begins for the transplant. Usually 9 days after she is admitted they do the transplant. It goes like a count down for blast of (T minus 9 days ect.. ) the day of the transplant is day zero and the they count up after that. I will most likely will be referencing these dates in the future, for example she is at -1 day to transplant or she is 3 days post. Just so you all know what I mean.
So for those who may not know the whole roll coaster story here is a brief outline: the original date was September 7th, but then we were told the Donor could not do it at that time, she could not do it until middle of October, so then it was a wait until October, then we got called that the old donor backed out and we have a new donor and the date is now the 14th of September. So it was hurry up, then a wait, and now hurry up. So mom went in today and start all her pre-admit stuff. The donor is schedule for the 4th for all her work up stuff, so we do have to wait for confirmation that she is healthy enough to donate before they go to much further. They may or may not have to do another biopsy on mom, though, which Sucks big time, the last one will not count because of the time frame, though we are holding out hope that we make it in the 30days from the last one. (So she does not have to have it done). She will be seeing the doctor weekly from now on. Next appointment will be more prep work and brief meeting with the doctor and then on the 10th of September will be a big meeting about how things will move from there. I guess that is all for now. It has been a very long day. We were at City of Hope all day, and walked back and forth across most of it today.

Tuesday, August 11, 2009

New time frame

Okay so there is more information from the doctor. My mother (Pat) and father (Joel) and brother (James) went to City of Hope to see the doctor about the time frame for the transplant. There was also concern about my mothers blood levels and palates. So on those two notes we have good news and bad news. The good news is that her blood levels were better not great but better. For the bad news the donor states that she can not give the cells until October so now the time frame for my mother has changed and she will not go in until mid October for the transplant, and the doctors are also going to contact the other possible donors to get more blood tests (just in case). We do not know why or what happened with the current donor, just that she can not do the transplant until October. So we wait. Other than that we do not know. The doctor did not seem happy but not much we can do, she will continue on the chemo for now.
In other news my mother and me went to a support group at City of Hope for blood cancers. It was nice, I believe that we will go again next month. It was nice to talk with people in the same boat. There was support people and patients in attendance.
Well I guess that is all the news for this week. Take care.

Tuesday, August 4, 2009

Bone Marrow Biopsy and City of Hope Visit

So today Pat, Joel, and myself (Hope) went to City of Hope for my mom to have her bone marrow biopsy. Which is funny from my point of view but not my mother's (Pat). She is very funny when coming out of the drugs they give her. Today when she came out she was talking to someone? about being a algebra teacher, so the doctor quizzed her about some equations. He was impress with her ability to do that kind of math that drugged. He stated it must be part of her cell structure. He was impressed. Pat came out of it great and they doctors stated that they got a good sample. So now She has another whole in her butt, but other than that everything went great. Pat's cancer numbers are up again. The doctor and us think this is due to the fact she was off her chemo for so long, with her trip and then getting sick. So they are starting her again with no break this time. In order to get the numbers back down. At this point the doctor does not think it will affect the transplant date, however the number do need to go back down before they can do the transplant. So send thoughts about cancer numbers down and good cells up. We will know more after her appointment next week. Doctor Parker wants to see her next week to discuss the biopsy results and her blood work results.

After her biopsy she then had to visit the social worker for City of Hope to make sure she is prepared for the transplant and that she has a good support system. We meet with Melisa and she was a LCSW and very nice. She seemed to think we had a pretty good support system ( I do too). Overall the visit went well. We were there most of the morning, from about 7:30am to 12:30pm Long day. By the end of the day I was done sitting still and was annoying my parents, not much has changed in 35 years. Oh well.

P.S. I found a website that does a great job of explaining the transplant process and all that goes with it. Here is the link: once there then click on Patients & Families tap.

Thank you all for your caring thoughts and statement.

Saturday, July 25, 2009

Hospital Stays

Pat will have to go into the hospital August 4 for a bone marrow biopsy. That is where they drill a hole into her hip, yes it hurts. So they are going to drug her well (hahah). She also my need some platelets at that time. So if any one is willing and able to donate some blood or platelets to the City of Hope that would be great.
(for those who can not read the strip it says : "you can have general anethesia or just be numbed from the wallet down") haha
She will then be admitted to City of Hope right after Labor Day she will be given some higher level Chemo to kill off her cancer cells for a week, and then she will receive the donor transplant. Then she will receive more chemo to wipe out the rest of her blood cells and to help accept the new cells. Then she will have to wait until the news cells set up shop in her bones. Then it is wait and see with her immune system after that. Once release from the Hospital she will have to stay close, so will set her up with the 5th wheel or in what City of Hope calls the Village. (where they have little apartments set up). She will see the doctor twice a week for a 100 days after released from the hospital. Then she can come home. However this schedule can change without notice and is just a general guide line and not set in stone by any means. If you have questions or what to make comments to Pat please do so there is a comment box at the need of each entry which then sends me and Pat an email with the comment. We would love to hear from all of you. I would love to know who if anyone is reading this.

Tuesday, July 21, 2009

Found a Donor

Pat, Joel and my self (Hope) all went to City of Hope today. Found out good news we have a Donor match. The donor is 33 years old, that is about all we know. They match my mom' s blood 11 points out of 12 which is great. So now begins the hard part for my mom to go through the transplant, so it looks like she will be admitted into the hospital right after labor day. Then it is 7 weeks in the hospital, then lots of different stages of recovery and time in recovery any where from 9 months to a year all in total. I will keep this blog updated as I get information. I will try to have my mom write something on it soon. I put a link of up for all those who want to found out more details about the transplant process. It is listed under Transplant process on the right hand side. Thank you all for your love and concern.

Tuesday, June 23, 2009

Great News

I (Hope) Went with my mother and father to City of Hope today to see how she was doing and to hear any information about the possible Donor. We heard good news all around. First news is that her cancers cells are not detectable which means she back in remission!!!!!!!! The second good news is that her platelets went up from 57 to 61. Which is great. This means most likely she will be able to go on her trip. However, this all needs to maintain for over a period of time. So the next couple of weeks we need to keep her in remission and it would help if you Platelets would go up more with out the cancer going back up. So if you all could have thoughts and prayers of cancer still down and platelets going up.

For more good news, City of Hope and my mom's wonderful doctor found 14 possible match's which they contacted to more testing and out of the 14; 4 went in for testing and one looks really good. They have more test to do, but the test they have done so far have been with good results. So a very possible donor now. Still have to wait more, but we will take the good news for now and be happy.

Found out a little more about the donor process for my mom's end: it is 6 to 7 weeks in the hospital and 6 months at home with bi-weekly visits and then 9 months to a year to maybe go back to work.
That is all for now

Saturday, June 13, 2009

Hurry UP and wait

City of Hope found a possible donor, the person lives in Europe. That is all we know about them. City of Hope has contacted them to go in for more testing. The person did and we are now waiting for the results. We will not know more for a while, it seem like a hurry up and wait kind of thing. But it is good news for now. On this end my mom's numbers need to go in the correct direction. Her plasma needs to go up and the cancer cells need to go down. She has the down part correct, we just need to work on the up part. We are all glad about the possible donor and are waiting to hear more. When I do I will let you know. (my mom has tried to post some blogs, but it has not worked out well for her yet.) That is all for now. Thank you all for caring.

Monday, June 8, 2009

pictures of the Drive

Family hanging around talking with everyone who came by.

Nice to see people and visit.

Finaly a good picture was taken of Pat

Bone Marrow Drive

Donor Drive finally happened. Thank you all for coming!


Saturday was the bone marrow donor drive. Thank you so much to all that came. We had a great turn out and enjoyed visiting with everyone who came. It was fun to see everyone. After is was all said and done we had 40 people sign up.

A big special Thanks to Rotary for their donation to the City of Hope. Perris Rotary is one of the best clubs in California. The donation will help lots of people find Hope.

Picture upper right is Our Rotary President giving the donation to Jesika who is from City of Hope.

Thank you all for your thoughts and love

- Pat-

Thursday, May 7, 2009

Bone Marrow Drive

We are going to have a Donor Drive for my mother (Pat as you all know her) It will be on June 6th from 11am to 3pm. It will be at Perris Congregational Church 100 North A st Perris CA 92571

In order to donate you have to be between the ages of 18 and 60 years old. No major health concerns such as HIV,diabetes, or have cancer.

Please come and join our family in supporting City of Hope and My wonderful mother!!!!!!!!!!!!!

I will try to have the City of Hope information up on this site as soon as Kevin teachs me how to do it. Hope to see you all on the June 6th. Even if you can not donate come out and see us. Thank you.
That covers it for now see you all soon