Wednesday, December 23, 2009
Just got back home from City of Hope all my numbers are good my only problem is I have a rash that is now all over my body. At first the nurse practitioner thought it was due to the antibiotic I was taking so Monday she changed the medicine. But today she had the Dr. look at it and it is Donner vs Host a form of rejection. The Dr gave me two oppositions to be put in the hospital or the go home and try the medicine and come back tomorrow. I am home. I am also on 60 mg. of steroid today and tomorrow. He will check to make sure it is working at 11am tomorrow. I am praying that it works!!! Other than that I am doing well and enjoying the time before Christmas. Made cookies with the grand kids yesterday what fun. We are having dinner at James house tomorrow and at my house on Christmas ( Joel cooking under my direction).
I Wish All a every Blessed Christmas.
Sunday, December 20, 2009
Thursday 12/17 was city of hope day and what a day. The STR (DNA) test came back and I am fully graphed which means I now have someone else DNA and Blood type. Spooky. My M spike the test for cancer in the blood is at 0 and all my other counts are great. I did manage to get a cold/flu I asked how as I have been no where and seen no one. Dr. said its in the air and it's not that unusual so am on timiflu and an antibiotic seems to be working as it is almost gone. I go in tomorrow for a 6 hours infusion to help my immune system so this doesn't happen again. Good idea long day. All in all this is a wonderful Christmas.
Have a great Christmas
Sunday, December 13, 2009
I got to come home Thursday night. I now know what heaven is like. It is my recliner and my bed. After 50 days it was so good to be home. I am being very careful to follow all the rules and you know how hard that is for me but this time I know my life depends on it. Will write soon now I am going back to my recliner and rest.
Friday, December 4, 2009
Yesterdays doctors visit was very good. Numbers are doing good and I am getting stronger each day. Now for the news the doctor said if I keep improving I will get to go home next Friday and just come to the hospital on Mondays and Thursdays. We thought we were here for 60 more days so this is big. I will still need someone with me 24 - 7 but it will be a lot easier at home. I just had to share that with you.
Thank You for all the prayer and caring
Tuesday, November 24, 2009
Monday, November 23, 2009
Pat will be going to the Hope Village on Wednesday in time for Thanksgiving. She is so excited and happy. She is doing great and all her numbers are where they are suppose to be. So the doctor is letting her get out of the hospital. However the doctor had told her he would let her know today and then was not able to come and see her until 6pm by which time she had worked her self into a big fury. When the doctor got there she did not give him a chance to even talk before she was asking when she can get out. He examed her and then finally told her she could get out on Wednesday. Which is good because I thought my mom was going to take him on and my money would have been on her to win.
Any way she is getting out and we are so excited.
Sunday, November 22, 2009
P.S. if you make food and she can not eat it, we can.
Friday, November 20, 2009
GENERAL FOOD RULES:
- wash hands and all surfaces (including cutting boards) with bleach solutions (see 2)
- wash can foods and drinks with bleach solutions (1 part bleach to 9 part water)
- Allow dishes ect to air dry do not towel dry. Best to hand wash not dishwasher.
- DO NOT use the microwave to cook any of her food.
- Wash all food with 1 teaspoon bleach to gallon of water solution (fruits and vegs)
Once the food is cook she has to eat it within an hour or she can not eat it. Once eaten she can eat the left overs the next day then it has to be throw away (if cleaned up and put away within an hour.) Frozen food has to been eaten within a week (cook at home then Frozen). Frozen food from grocery stores is okay. Frozen foods have to be cooked in the oven or stove top, can not be cooked in Microwave. She is allowed only five kinds of Fruit which are: apples, oranges, bananas, watermelon, and honeydew. No other fruit.
We are asking for extra cook books that were giving to us to hand out to those of you that may be interested. If you have questions or concerns please let me know I will do my best to answer.
Please take care and thank you
Saturday, November 14, 2009
Thursday, November 12, 2009
Wednesday, November 4, 2009
She is feeling better and able to talk more and stay awake longer. With the first hurdle not so much jumped over but knocked down and crawled over we still have many more to go. But one down is better than none.
She still needs blood and platelets so if you have the time please donate, you can donate directly to my mom at City of Hope only. However all hospitals need blood so please donate any where.
Much love. Take care.
Sunday, November 1, 2009
We are waiting for her T-cells to starting producing and that should be sometime in the coming week. As we wait for the cells to start to grow we also are concerned for the host vs graft issues, she is having some problems with her kidney function, so has not been able to receive as much of the anti-rejection medication as the doctor would like. It has been a weird balancing game of give her the medication having her kidneys react, then flushing her kidneys out then having them come back, and then getting the medication again.
Saturday, October 24, 2009
Saturday, October 17, 2009
She will be at Helford Hospital at City of Hope. She will be there through most of the major Holidays. She is allowed visitors and would love to have them. There are guidelines there to protect the patients. Please visit the link post to the right side under visitation guidelines.
Monday, October 12, 2009
Sunday, October 11, 2009
We are close now to having her cured, we just need to get her into the hospital, but we are closer now then we have been before so that is good.
Please remember that these dates can and will change with out notice. Thank you all for your continued support and love.
Thursday, September 24, 2009
Wednesday, September 23, 2009
Saturday, September 19, 2009
Her cancer numbers (the bad protein numbers) are up and her M spike which also is related to the cancer proteins are up. So the bad protein and the M spike can not be going up when she receives the transplant. It is hard to understand so I will let those of you who are interested google it. Other wise trust me in that her numbers need to be going down when she has the transplant.
So my mother got an infusion yesterday after meeting with the doctor and she will be going twice a week for three weeks for infusions. The doctor will re-evaluate her numbers to see where she is at every week. A side note, my mother fell a couple of weeks ago and re-injured her back. She informed the doctor that she is still hurting. The doctor is concerned because this is happening the same time her number are going up, so she needs to take steroids everyday until Monday. She will then go in for an MRI on her back to find out what is wrong with her back, the doctor is concerned that it may be a tumor on her spine. Which is why he put her on the steroids they will help slow or reduce the tumor if there is one.
We all believe that she hurt her self being oh so graceful, but the doctor wants to be careful at this point. Which we are all grateful for, though being on that much steroid for that long will be a challenge. But the doctor did give her strong sleeping pills which my father is thankful for.
At this point it seems it is a wait and see. So to sum up, my mother is on stronger chemo twice a week, more steroids, we need to wait for the transplant until her numbers go back down. The transplant will happen it is just a matter of when.
thank you all.
Friday, September 18, 2009
So for those of you still on the ride with me it looks like the rollycoaster just took off again before we could get off. Hang on for the ride, throw your hands in the air and scream. We might as well have so fun if we are going to keep riding.
Remember to look for the Miracles
they are everywhere
Friday, September 11, 2009
Saturday, September 5, 2009
Why not wait and see if I can find a better match? My cancer is being very uncooperative. Even on the chemo it keeps trying to take over. The Dr. is having a hard time keeping my numbers down. We can wait but there will be significant damage to my health. So we go with the new doner. I am very lucky I have a third doner to go with there are lots of people that would jump at a chance to have any kind of a match.
We will know for sure if this doner is a go next Friday. I will update all of you than. Have an awesome week and please enjoy each day.
Look for the miracles.
Thursday, September 3, 2009
Thursday, August 27, 2009
Tuesday, August 11, 2009
Tuesday, August 4, 2009
So today Pat, Joel, and myself (Hope) went to City of Hope for my mom to have her bone marrow biopsy. Which is funny from my point of view but not my mother's (Pat). She is very funny when coming out of the drugs they give her. Today when she came out she was talking to someone? about being a algebra teacher, so the doctor quizzed her about some equations. He was impress with her ability to do that kind of math that drugged. He stated it must be part of her cell structure. He was impressed. Pat came out of it great and they doctors stated that they got a good sample. So now She has another whole in her butt, but other than that everything went great. Pat's cancer numbers are up again. The doctor and us think this is due to the fact she was off her chemo for so long, with her trip and then getting sick. So they are starting her again with no break this time. In order to get the numbers back down. At this point the doctor does not think it will affect the transplant date, however the number do need to go back down before they can do the transplant. So send thoughts about cancer numbers down and good cells up. We will know more after her appointment next week. Doctor Parker wants to see her next week to discuss the biopsy results and her blood work results.
After her biopsy she then had to visit the social worker for City of Hope to make sure she is prepared for the transplant and that she has a good support system. We meet with Melisa and she was a LCSW and very nice. She seemed to think we had a pretty good support system ( I do too). Overall the visit went well. We were there most of the morning, from about 7:30am to 12:30pm Long day. By the end of the day I was done sitting still and was annoying my parents, not much has changed in 35 years. Oh well.
P.S. I found a website that does a great job of explaining the transplant process and all that goes with it. Here is the link: http://www.marrow.org/ once there then click on Patients & Families tap.
Thank you all for your caring thoughts and statement.
Saturday, July 25, 2009
Tuesday, July 21, 2009
Tuesday, June 23, 2009
Saturday, June 13, 2009
Monday, June 8, 2009
Donor Drive finally happened. Thank you all for coming!
Saturday was the bone marrow donor drive. Thank you so much to all that came. We had a great turn out and enjoyed visiting with everyone who came. It was fun to see everyone. After is was all said and done we had 40 people sign up.
A big special Thanks to Rotary for their donation to the City of Hope. Perris Rotary is one of the best clubs in California. The donation will help lots of people find Hope.
Picture upper right is Our Rotary President giving the donation to Jesika who is from City of Hope.
Thank you all for your thoughts and love
Thursday, May 7, 2009
We are going to have a Donor Drive for my mother (Pat as you all know her) It will be on June 6th from 11am to 3pm. It will be at Perris Congregational Church 100 North A st Perris CA 92571
In order to donate you have to be between the ages of 18 and 60 years old. No major health concerns such as HIV,diabetes, or have cancer.
Please come and join our family in supporting City of Hope and My wonderful mother!!!!!!!!!!!!!
I will try to have the City of Hope information up on this site as soon as Kevin teachs me how to do it. Hope to see you all on the June 6th. Even if you can not donate come out and see us. Thank you.
That covers it for now see you all soon