The Surgery update

Mom (Pat) had her surgery on Wednesday in order to fix her arm. The surgery went well. Her arm was pretty bad so they decided to replace the shoulder and the upper arm bones. She now has a metal arm and shoulder. There was a large tumor on the arm bone and it had gone into the muscle/tissue. So we are waiting to find out the results of the biopsy which will tell us whether or not it is active cancer. Either way her cancer needs to be put back into remission again. She will need lots of recovery time at least 6 weeks before she can move the arm. That is all for now. I'll do my best to keep everyone up to date.

As Comfortable as it gets

I (Hope) went and say mom today and she is as comfortable as one can be with an constant upset stomach and a broken arm. She is slowly getting better but it is often two steps forward and one step back. She is waiting to see for a lot of things they found a blood clot so she is now limited to what she can do once again, and is now on more medication to dissolve this. The clot is at the end of her pick line ( permanent IV) so they have to be careful and remove the clot because they need to keep that pick line. The doctors are trying to solve the stomach issues and get the Graft vs host disease under control. It looks like they have the pneumonia under control and all the other infections as well. So we are just trying to slowly work down the list and take care of all the issues. Again thank you for your continued support and prayers, keep them coming.

Improving

Much better news to give today. Mom's (Pat) cancer is reacting better then the doctor thought to the medication and it has gone down greatly. YEAH. Also, she is feeling much better and doing better everyday. The other great news is the doctors scheduled the surgery for her arm for next Wednesday. So her arm is going to get fixed next week. She is feeling better and the doctors feel she will be out in a couple of weeks. She needs to get over her stomach problems and start eating. But we are moving in the right directions. Thank you all for your support.

Not quite there

I (Hope) went and saw Mom (Pat) today and she looked better and sat up in a chair for a while this morning. All in all better but not quite there yet. She is doing a little better and they are running more test to see what is going on. She is still not eating so the doctors order an IV feed. It may take a while for her to pull out of this but small steps are better than no steps. But there was some improvement. Thank you all for your continued support and care. Love you all.

Hope

OOPS

Well no news is good news. I have not had to write anything for about 11 months because we had smooth waters for a while. Mom (pat) was doing well and even went back to school for 3 days.

Well now things went side ways on us. She is not doing well at the moment. We are not sure what is wrong at this time. She is sick with vomiting and ect.., so she is dehydrated and malnourished (this is not a comment on dad's cooking however he is believe it or not a really good cook).

Right now she is at City of Hope on the fifth floor and we are waiting to hear what the doctor says about her. She has had some more test and then some more test and we are waiting to find out what they all say and mean.

She does have her broken arm which needs surgery in order to be fixed but can not do the surgery until we get all this under control. Her cancer is back but at the last talk with the doctor he believes he can get it under control again. She does have graft vs host disease where the donor cells say hey this is not by body and starts attacking. Then to add insult to injury she now has pneumonia. Soooo, sorry for the bad news but I know lots have been asking about her so that is what I know as of 8pm Sunday night. When I learn more I will try to write more. Thank you all for your love and support.

Hope

more good news

Hi,
Saw the Dr. on Thur. all my counts are good. He didn't change any of my meds and I don't have to go back for three weeks!!! He gave me a z-pack for the cold and it's already much better. I do have to go in for an infusion on Tue. (6hours) as my immune count is down for the third time. I would say I am going to read but with all the pre meds I know all I'll do is sleep. I am going to go now and play with the grand kids. Have a great weekend everyone.

Beautiful weather and beautiful news

Hi all,
We are having beautiful weather and great news. All my counts are doing great. In fact they are so good I am now down to 5mg of steroids per day!! The Dr. also took me off of two of my other meds and lowered the amount of two more meds. I am down below twenty meds now how great is that.
My energy is much better I am back up to about 50% off my pre cancer energy. Haven't been there in a long time. I even had the energy to make Easter outfits for Avalon and Ronin. Yesterday Ronin and Avalon helped me plant a vegetable garden I pointed and they dug and planted. What fun.
Hope your life is going as well as mine and that you are looking around and seeing all the miracles.
Love Pat