Always something new

Hi,
Just got back home from City of Hope all my numbers are good my only problem is I have a rash that is now all over my body. At first the nurse practitioner thought it was due to the antibiotic I was taking so Monday she changed the medicine. But today she had the Dr. look at it and it is Donner vs Host a form of rejection. The Dr gave me two oppositions to be put in the hospital or the go home and try the medicine and come back tomorrow. I am home. I am also on 60 mg. of steroid today and tomorrow. He will check to make sure it is working at 11am tomorrow. I am praying that it works!!! Other than that I am doing well and enjoying the time before Christmas. Made cookies with the grand kids yesterday what fun. We are having dinner at James house tomorrow and at my house on Christmas ( Joel cooking under my direction).
I Wish All a every Blessed Christmas.
Pat

Good news

Hi,
Thursday 12/17 was city of hope day and what a day. The STR (DNA) test came back and I am fully graphed which means I now have someone else DNA and Blood type. Spooky. My M spike the test for cancer in the blood is at 0 and all my other counts are great. I did manage to get a cold/flu I asked how as I have been no where and seen no one. Dr. said its in the air and it's not that unusual so am on timiflu and an antibiotic seems to be working as it is almost gone. I go in tomorrow for a 6 hours infusion to help my immune system so this doesn't happen again. Good idea long day. All in all this is a wonderful Christmas.
Have a great Christmas
Pat

Hi,
I got to come home Thursday night. I now know what heaven is like. It is my recliner and my bed. After 50 days it was so good to be home. I am being very careful to follow all the rules and you know how hard that is for me but this time I know my life depends on it. Will write soon now I am going back to my recliner and rest.

Home soon

Hi from the village,
Yesterdays doctors visit was very good. Numbers are doing good and I am getting stronger each day. Now for the news the doctor said if I keep improving I will get to go home next Friday and just come to the hospital on Mondays and Thursdays. We thought we were here for 60 more days so this is big. I will still need someone with me 24 - 7 but it will be a lot easier at home. I just had to share that with you.
Thank You for all the prayer and caring
Love Pat

No Cancer

Hi All
Just talked to the Dr. and the test show no signs of the myloma. They will do a bone marrow biopsy in the next two weeks which will show if there is any left in the marrow but it looks really good.
Thank God
Pat

Pat is Getting Out

Everyone it is finally happening, that is right she is getting out.
Pat will be going to the Hope Village on Wednesday in time for Thanksgiving. She is so excited and happy. She is doing great and all her numbers are where they are suppose to be. So the doctor is letting her get out of the hospital. However the doctor had told her he would let her know today and then was not able to come and see her until 6pm by which time she had worked her self into a big fury. When the doctor got there she did not give him a chance to even talk before she was asking when she can get out. He examed her and then finally told her she could get out on Wednesday. Which is good because I thought my mom was going to take him on and my money would have been on her to win.

Any way she is getting out and we are so excited.

love
Hope

Low Bacteria Diet

So what does a low Bacteria Mean. Kevin (because he is amazing) was able to up load the guidelines below. Please just click on the page and it will get bigger so that you can read them. This way everyone can know what she can and not eat. This is not all the information but it is most of it. When in doubt ask, but this should help out most of us. Thank you all.

P.S. if you make food and she can not eat it, we can.

love Hope.